Find Nonprofit and Small Business Grants

Advance Search

Only Available for Paid Subscribers
Clear Filters
Search Filters

Rare As One Network

Grants to USA Nonprofits Led By Patients to Develop Collaborative
Research Strategies and Networks Related Their Rare Diseases

Agency Type:

Foundation / Corporation

Funding Source:

Add to My Calendar 

Chan Zuckerberg Initiative (CZI)

Deadline Date:

07/23/19 5:00 PM Pacific Time

Description:

Request a Grant Writer

Grants to USA nonprofit advocacy organizations led by patients for the development of research networks related to their rare diseases. Funding is intended to create and develop a model in which researchers and clinicians work together with patients to explore new research strategies and approaches with the goal of advancing progress against their diseases. Successful applicants will receive funding, training, community mentorship, and capacity building resources.

Each research community will be led by a patient organization in collaboration with researchers and clinicians. The Rare As One Network will initially focus on helping patient groups build a network of researchers, clinicians, and patients working together to align on the state of the science, the open research questions, and research priorities for their rare disease. The creation of shared research priorities will incorporate the needs of key stakeholders and help optimize research funding.

Prioritization Criteria:
- Need for a Research Network as demonstrated by insufficient activity within the disease area that is dedicated to the formation of shared research priorities.
- Leadership and Organizational Focus that reflect and adequately represent the diversity of the community served.
- Commitment to Collaboration as demonstrated by having a track record of joining (or attempting to join) with other groups to increase impact; awareness of existing complementary efforts and organizations and a vision for resolving any redundancy; and a desire to draw on existing community relationships and/or build new ones.
- Patient Community­-Oriented in connecting with the population affected by the disease and in developing strategies and solutions with input from the community.
- Potential to Advance Science in the disease area field through engagement with the research community and creation of a research network.

For an additional list of evaluation criteria, see:
https://chanzuckerberg.com/wp-content/uploads/2019/06/Rare-as-One-RFA-SMApply-Application-Instructions-and-Application_6.10.19.pdf#page=4

GrantWatch ID#:

GrantWatch ID#: 186429

Number of Grants:

CZI will provide up to 10 patient organizations with grants.

Estimated Size of Grant:

Each grant will be up to $450,000 total over a period of two years.

Term of Contract:

Awards will be two years in length with a project start date of no earlier than January 2020. Actual start date may vary.

Additional Eligibility Criteria:

Minimum Criteria:
- The applicant is representing a patient­-led organization focused on a rare disease, disorder, or syndrome, or group of closely related rare diseases, disorders, or syndromes, defined as a condition affecting fewer than 200,000 people in the U.S.
- The organization must be tax ­exempt under section 501(c)(3) of the Internal Revenue Code OR have a valid fiscal sponsor that is tax­-exempt under section 501(c)(3) of the Internal Revenue Code.
- Applicants selected to participate in the final round of review will be asked to submit valid documentation with their proposal by the deadline. This should include a copy of your most recent IRS determination letter—or the IRS letter of your fiscal sponsor—showing the organization’s tax-­exempt status. If your organization is fiscally sponsored, please also submit the fiscal sponsorship agreement signed between your organization and your fiscal sponsor.
- As part of this application, the applicant must have assembled a team of at least one researcher and at least one clinician to work together with the patient organization to form a research network. This initial “network leadership team” will help build a larger network of researchers, clinicians, and patients.

The researcher and clinician roles must be filled by two separate individuals (as opposed to a single MD­PhD). CZI reserves the sole right to decide if an applicant or applicant organization meet the eligibility requirements.

Women, underrepresented minorities, and organizational leaders representing disease areas that disproportionately impact underrepresented communities are strongly encouraged to apply.

Facebook employees, including employees of any subsidiary Facebook entities, are not permitted to apply for this grant.

Pre-Application Information:

This grant program will accept Letters of Interest starting at 9 a.m. PDT Tuesday, June 11, 2019 until 5 p.m. PDT on Tuesday, July 23, 2019. After an initial round of review, a select set of organizations will be invited to submit a full application. Finalists will be notified in August. Final applications will be due late September 2019.

Key Dates:
- June 11, 2019: Application portal opens at 9 a.m. PT to receive Letters of Interest
- July 23, 2109: Letters of Interest due by 5 p.m. PT
- Late August 2019: Earliest notification for invitation to submit full applications
- Late September 2019: Full applications due
- November 2019: Earliest notification of decisions (subject to change)
- January 2020: Earliest start date of award period (subject to change)

Additional information: https://medium.com/@cziscience/rare-as-one-d6ed9b0b8b16

Contact Information:

Before starting your grant application, please review the funding source's website listed below for updates/changes/addendums/conferences/LOIs.

Apply online: https://apply.chanzuckerberg.com/

For technical assistance and other questions contact: rareasone@chanzuckerberg.com.

URL for Full Text (RFP):

Geographic Focus:

USA: Alabama;   Alaska;   Arizona;   Arkansas;   California;   Colorado;   Connecticut;   Delaware;   Florida;   Georgia;   Hawaii;   Idaho;   Illinois;   Indiana;   Iowa;   Kansas;   Kentucky;   Louisiana;   Maine;   Maryland;   Massachusetts;   Michigan;   Minnesota;   Mississippi;   Missouri;   Montana;   Nebraska;   Nevada;   New Hampshire;   New Jersey;   New Mexico;   New York City;   New York;   North Carolina;   North Dakota;   Ohio;   Oklahoma;   Oregon;   Pennsylvania;   Rhode Island;   South Carolina;   South Dakota;   Tennessee;   Texas;   Utah;   Vermont;   Virginia;   Washington, DC;   Washington;   West Virginia;   Wisconsin;   Wyoming

Suggested Grants:

Fundraising and Publicity Opportunity for USA, Canada, and International Nonprofits for Cult...

Deadline Ongoing

Fundraising opportunity for USA, Canada, and International nonprofit organizations to host a jazz concert held in honor of their organization or cause. Applicants must contact the funding source prior to applying. In addition to funds raised through concert ticket sales

GrantWatch ID#: 123735

Grants to USA Nonprofits to Address the Climate Crisis and Reduce Inequality

Deadline Ongoing

Grants to USA nonprofit organizations to reduce social inequality and promote solutions to the climate crisis. Eligible programs will address the areas of racial and economic justice, corporate and political accountability; voice, creativity, and culture; and an inclusi

GrantWatch ID#: 123756

Grants to USA, Canada, and International Independent Filmmakers for Feature-Length Documentar...

Deadline Ongoing

Grants to USA, Canada, and International independent filmmakers for feature-length documentary films in development stage to post-production. Funding is intended to support independent, nonfiction films that demonstrate effective storytelling, feasibility and originalit

GrantWatch ID#: 127055

Grants to Alaska Nonprofits, Schools, Colleges, Museums, and Tribes for Native Alaskan Educa...

Deadline 03/01/20

Grants to Alaska nonprofit organizations, schools, colleges, cultural centers, museums, and tribal organizations for educational opportunities in eligible regions. Funding is intended to provide access to high-quality education for native adults and children who are ori

GrantWatch ID#: 128374

Grants to Alaska Nonprofits, Schools, Colleges, Tribal Organizations, and Individuals for Al...

Deadline 03/01/20

Grants of up to $6,000 to Alaska nonprofit organizations, schools, colleges, tribal organizations, and individuals to promote the culture of Native Alaskans in eligible regions. Funding is intended to support projects that further the traditions of these peoples, preser

GrantWatch ID#: 128375

Grant to a USA Nonprofit to Improve Healthcare For Underserved Populations

Deadline 03/16/20

Grant to a USA nonprofit organization to improve healthcare among underserved populations. Applicants are advised to verify or create the required registrations well in advance of the deadline date. The purpose of the program is to educate mental health professionals ab

GrantWatch ID#: 128550

Grant to a USA, Canada, or International Psychology Graduate Student to Research the Effects...

Deadline 06/15/20

Grant of $9,000 to a USA, Canada, or International graduate psychology student for research and demonstration projects that foster understanding of the relationship between self-identity and scholastic achievement, primarily for children in kindergarten through eighth g

GrantWatch ID#: 132694

Grants to USA, Mexico, and Haiti Nonprofits, Agencies, and For-Profits to Assist Underserved ...

Deadline Ongoing

Grants to USA, Mexico, and Haiti nonprofits, for-profit organizations, and government entities for programs and services that improve the quality of life for underserved children. Focus areas include working families, equitable communities, and thriving children. The Fu

GrantWatch ID#: 133552

Grants to USA IHEs and Nonprofit Media Arts Organizations for Film Fellowships and Scholarsh...

Deadline 06/01/20

Grants to USA colleges, universities, and nonprofit media arts organizations for film fellowships and scholarships. Funding is intended to support film projects by students and fellows in the early stages of their careers. Films can be comprised of, but are not limited,

GrantWatch ID#: 133688

Donations & Sponsorships to USA Nonprofits & For-Profits for Education, Literacy, and the Ar...

Deadline Ongoing

Donations to USA nonprofit organizations for programming support for arts, pre-K-12 education, and literacy programs across the country. In addition, sponsorship opportunities are provided to USA for-profit and nonprofit organizations focusing on literacy, the arts, a

GrantWatch ID#: 134869